Lori Williamson Dean
Researcher
Also affiliated: University of Arkansas Medical Center (2024)
Faculty Researcher
Research Areas
Biomedical Subjects
Biography and Research Information
OverviewAI-generated summary
Lori Williamson Dean's research focuses on the perspectives and experiences of individuals navigating genetic counseling and related healthcare services. She has investigated barriers and strategies for integrating medical genetics into primary care for underserved populations and explored parental experiences with newborn screening for Pompe disease, particularly for late-onset diagnoses. Dean has also examined international students' views on the genetic counseling application process, the significance of family history for adult adoptees, and parent and adolescent perspectives on tumor surveillance for adolescents with cancer predisposition syndromes. Her work also includes a review of best practices for delivering telegenetics services and an examination of perceptions and attitudes towards gene therapy among adults and parents of individuals with autism spectrum disorder. Dean's scholarship metrics include an h-index of 7, with 25 total publications and 189 citations.
Metrics
- h-index: 7
- Publications: 25
- Citations: 190
Selected Publications
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Dating and disclosure in young adults with a hereditary cancer predisposition syndrome: A quantitative analysis (2026)
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Assessing the perspectives of genetic counselors with oncology patients at the end of life (2025)
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Playing Russian Roulette: Parent and Adolescent Perspectives on Tumor Surveillance for Adolescents with Cancer Predisposition Syndromes (2024)
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Delivering Telegenetics Services: Review and Synthesis of Best Practices (2024)
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Host perspectives on international fieldwork placements for U.S.‐based genetic counseling students (2024)
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International students' perspectives on the genetic counseling application process (2024)
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Does the amount of family history matter? Perspectives of adult adoptees (2023)
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Newborn screening for Pompe disease: Parental experiences and follow‐up care for a late‐onset diagnosis (2022)
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Barriers and strategies to integrate medical genetics and primary care in underserved populations: a scoping review (2021)
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Genetic counseling graduate training to address religion and spirituality in clinical practice: A qualitative exploration of programs in North America (2020)
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Eliciting culturally and medically informative family health histories from Marshallese patients living in the United States (2020)
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Access barriers to genetic services for Spanish‐speaking families in states with rapidly growing migrant populations (2019)
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Genesurance Counseling: Genetic Counselors’ Roles and Responsibilities in Regards to Genetic Insurance and Financial Topics (2017)
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Analysis of Reimbursement of Genetic Counseling Services at a Single Institution in a State Requiring Licensure (2017)
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The role of the genetic counselor in the preimplantation genetic screening decision (2016)
Grants & Funding
As listed on this researcher's institutional profile.
- Heartland Regional Genetics Network Health Resources & Services Administration via University of Oklahoma Health Sciences Center
- Experiences of donor-conceived people (DCP) in navigating their genetic-relative family health history National Society of Genetic Counselors
- Heartland Regional Genetics Network - Continuation - Continuation Health Resources & Services Administration
Collaboration Network
Top Collaborators
- Does the amount of family history matter? Perspectives of adult adoptees
- International students' perspectives on the genetic counseling application process
- Playing Russian Roulette: Parent and Adolescent Perspectives on Tumor Surveillance for Adolescents with Cancer Predisposition Syndromes
- International students' perspectives on the genetic counseling application process
- Host perspectives on international fieldwork placements for U.S.‐based genetic counseling students
- Barriers and strategies to integrate medical genetics and primary care in underserved populations: a scoping review
- Barriers and strategies to integrate medical genetics and primary care in underserved populations: a scoping review
- Barriers and strategies to integrate medical genetics and primary care in underserved populations: a scoping review
- Barriers and strategies to integrate medical genetics and primary care in underserved populations: a scoping review
- Newborn screening for Pompe disease: Parental experiences and follow‐up care for a late‐onset diagnosis
- Newborn screening for Pompe disease: Parental experiences and follow‐up care for a late‐onset diagnosis
- Newborn screening for Pompe disease: Parental experiences and follow‐up care for a late‐onset diagnosis
- Does the amount of family history matter? Perspectives of adult adoptees
- Does the amount of family history matter? Perspectives of adult adoptees
- International students' perspectives on the genetic counseling application process
- Host perspectives on international fieldwork placements for U.S.‐based genetic counseling students
- Host perspectives on international fieldwork placements for U.S.‐based genetic counseling students
- Delivering Telegenetics Services: Review and Synthesis of Best Practices
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